Dear World, Welcome to my world. I feel your pain and your worry and your sadness. I feel your grief. I understand more than you even know. Your world has been turned upside down. Nothing really makes sense anymore. Routines have been changed. You aren’t quite sure what the future looks like anymore. Suddenly everyone […]
Welcome to my world–the life of a medically fragile child in the midst of a pandemic.
April 10, 2020 Leave a Comment
Grieving… the child you dreamed about and loving the child you have.
June 11, 2019 Leave a Comment
Momma, this one is for you. The mom who is deep in the trenches of life you didn’t imagine. A diagnosis you never saw coming. A life that took you by surprise. Grief. They say it comes in waves. How funny. Funny that waves something we associate with the ocean –something peaceful– can also be […]
What do I do when God disappoints…
January 31, 2019 Leave a Comment
This week has been a dream. Olivia has been off one of her medications. It has been pure bliss as we have watched her come back to life. Without that specific medication in her system she has flourished. Where once it was like waking the dead, now she is up before the sun. Where once […]
111 days and a secret so simple.
January 1, 2019 Leave a Comment
111 days. One hundred eleven days. What do you do when life as you know it is numbered. When there is a real timeline, and it ends on a specific date. What do you do with this one life? This one chance? Do you keep doing what your doing? Do you do a 180 and […]
Grace Lives Here 